Tuesday, June 11, 2013

fun...

Got to do this fun thing for work....

  • Who was your favorite celebrity as a child? Debbie Gibson, Mariah Carey
  • What type of pets do you have? I have a cute dog names Mylie
  • What is your favorite color? anything sparkely 
  • What is most memorable about your high school years? HA! leaving them...no probably cheerleading
  • What word describes you best?  my daughter says " talented" I say "honest"..lol
  • What is your greatest accomplishment? my greatest accomplishment comes at the end of every day when I tuck my children in bed and know they feel loved and safe...
  • What drives you every day? adventure, I am always looking for a new adventure, something new to learn
  • Where do you want to retire? Somewhere warm
  • What is your business goal this year? To feel like I am contributing my fullest to all I am involved in.
  • Where do you like to vacation? Anywhere!
  • Who do you admire? I admire any one who is grounded and honest through their trials of life.
  • What is your mission? to leave this world better then it is currently.
  • If you were invisible, where would you go? LOL, probably the White house, need to see what Obama is REALLY up to. lol
  • What traits in others are you attracted to? fun, real, hard working, those with a cause.
  • What is the kindest thing anyone has done for you? there are many friends who have been kind to me but specifically I remember that When My grandma died a friend from Montana sent me flowers, I  was SO lonely and he remembered me when no one else did.
  • How do you want to be remembered? as a person who was totally true to herself, hopefully that means I was kind and hard working and fun...lol
  • What would you do with a million dollars? put money aside for my kids college and wedding and missions, buy a house, travel the world...put some in a few different charities I believe in.
  • If you were on an island, who would you want to be with? Why? My man Mike, he is my best friend.
  • You have a 10 minute speech to give at a banquet, what is it about? Standing for something, fighting for what you believe regardless of what it is.
  • If the TV is on, I'm watching... DWTS, anything wedding related, Psych, parks and Rec, downton Abbey
  • If the refrigerator is open, I'm grabbing a.... Sobe life water
  • I want(ed) to be a Singer when I grow/grew up.
  • It's Saturday night at 8PM. You'll find me ....on a perfect night, eating icecream
  • It's Monday morning at 7AM. You'll find me .... cleaning and eating breakfast with the kids
  • What was your favorite childhood toy? I don't think I had one..
  • If you could take a trip to any place in the world, where would you go? Israel, Italy
  • If you could only eat one food, and nothing else, for three days in a row, what would it be? peanut butter chocolate milk shakes!
  • What is your favorite movie? So cheezy. Pride and prejudice ( newest version)
  • What's one thing for which you'd like to be remembered? Didn't I already answer this? being awesome, but mostly for being kind and making changes where they need to happen.
  • If I had more time, I would- this list is TOO long, work on my music skills both vocal and piano/guitar/organ, be crafty, actually get everything done I set out to every morning___.
  • What's your idea of a perfect date? just a night with no stress for money and my mike with me.
  • Please describe a goal on your life's to-do list.- to conquer fear. fear of what I can or can't do, fear of feeling guilty for what I don't, fear of messing up whatever I am currently doing.

Thursday, June 6, 2013

He gets it

Well, I can honestly say I don't know what to do with my self right now. He got it. The Dr. Understood the whys, the how's and the options as to how to figure it all out- including several I had not considered....all of it. He talked with us for almost and hour and a half. Asked the questions I needed to hear, thought of things I hadn't heard of for if  it ISN'T celiac, that we can then look at...all of it. He got it. Tomorrow we will get the blood work done, and in about 10 days I can make a plan with the Dr. of how to move forward.

The goal?

To get answers and to improve Jacks quality of life..or so says the Dr....and agrees the very thankful mom.

Big day for Jack.

In 45 minutes I head up to see a G.I specialist here in Phoenix. Jack came to me several months ago and asked if he could go through the testing for Celiac Disease. He was very serious and I could tell he had spent a lot of time thinking about it. He told me he felt like he needed to know if this was something he was going to have to live with his whole life. He wanted to know if when he was " glutened" if it was damaging his body or not and what that would mean for the future. He wanted to know so that he could better combat the social struggles that come from being different from all the other kids at school. He wanted to know...for himself.

I went to my room and cried...and cried... You see to get tested for celiac after being on a gluten free diet for so long, Jack will need to eat the very thing that makes him sick for about two months. Essentially, he has to damage his body ( intestines specifically) so badly that when they do a biopsy at the end of the 6 weeks, it will show conclusively that he has celiac. I cried for two reasons. first, I know what eating wheat will do o him, how his body will hurt, how emotional he will be, how sick he will eventually get from an immune system that is shot. no mom can feel happy about hurting their child. Can I even feel o.k with knowing what I am allowing to happen to his body?? Second, WHAT IF I put him through all that pain and the biopsy comes back negative? What if he goes through all that only to discover its NCGS or non- celiac gluten sensitivity??

There is one other test I can ask for instead of putting him through the pain of eating wheat, its a genetic test. This was recommended to me by one of my favorite Dr.'s at the CDF conference two months ago and what gave me the courage to see this through for jack. While I feel like its our best and least painful option, Mike and I have already decided that if the G.I Dr. here feels like we need to do the biopsy, then we will. At some point in all this I have to trust a Dr. somewhere.

Originally when I called to get the appt. We could not even get in until the end of July, after school starts. I was devastated, because last time jack even had 2 bites of cherrios ( link for that HERE) he was a mess and missed 2 days of school. Yesterday I got the call saying they had an opening if we could come. This would allow Jack to go through this process with out interfering with his schooling. A HUGE blessing!!

I am so nervous and scared, if this does not go well where do we go?? what do I do? This morning I called this insurance agency and trying to remeber specific information of how this has all played out so that my emotions will not get the best of me. If you are curious as to how we went Gluten free in the first place I blogged about it about a year ago, here is the LINK for that.

Anyway, blogging helps calm me down. I have so many thoughts and emotions about it all and not time to write them out completely. But for those who know and love us, I wanted to give the basic information about it all and ask that you keep us in your prayers because I have no idea what the next few weeks will bring for us and most importantly for little sweet Jack.